Personalized Medicine for Rare Diseases Market

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Question ^*

What is your biggest challenge in managing your/your patient's rare disease?

1. Delayed/Inaccurate Diagnosis

2. Lack of Effective Treatments

3. Limited Access to Specialists

4. High Treatment Costs

5. Difficulty Finding Information/Support

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Question ^*

How important are the following Personalized Medicine approaches to you? (Scale: Not Important, Somewhat Important, Very Important)

1. Genetic Testing/Sequencing

2. Targeted Drug Therapies

3. Personalized Treatment Plans

4. Pharmacogenomics (Drug Response Prediction)

5. Data-Driven Research for my Disease

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Question ^*

What type of information or service would be most valuable in navigating Personalized Medicine for your rare disease?

1. Explanation of Genetic Test Results

2. Information on Relevant Clinical Trials

3. Connections to Rare Disease Specialists

4. Support in Understanding Treatment Options

5. Assistance with Insurance Coverage/Financial Aid

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Question ^*

What features would you most value in a platform designed to support Personalized Medicine for rare diseases? (Select up to 3)

1. Secure Data Storage & Sharing

2. Personalized Treatment Recommendations

3. Communication Portal with Specialists

4. Patient Registry/Community Forum

5. Educational Resources on Rare Diseases

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Question ^*

How willing are you to share your genetic/medical data (anonymized/de-identified) for research to advance Personalized Medicine for rare diseases?

1. Very Willing

2. Somewhat Willing

3. Neutral

4. Somewhat Unwilling

5. Very Unwilling

6. Prefer not to answer

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